Dear Friends and Family,
You may not have heard from Virginia Cory for some time – and knowing my mother’s love of connection and correspondence, that would be of concern to all of you. I can offer a simple explanation of a long and too-familiar story.
Virginia was diagnosed in late February 2012 with late stage lung cancer and moderate dementia after a series of falls and trips to the emergency room. The last several months have seen her move within her Mt. Angel Towers community from independent to assisted living, and to begin hospice care to provide her comfort and assistance as she faces the challenges of the progression of both cancer and dementia.
In consultation with her care team, including her hospice advocates from Willamette Valley Hospice, I wanted to let you all know that Virginia is doing well, continues her daily routine of attending Mass and participating in some of the many activities of Mt. Angel Towers, and is reasonably comfortable.
Virginia’s dementia slowly manifested its effects to us. Like many older adults who maintain active lives well into their 80s, Virginia bridged her cognitive gaps with a structured daily regimen that allowed her to continue her daily activities with few signs of the extent of her cognitive impairment.
However, beginning in 2009, Virginia began to loose the ability to respond to new situations, including responding to correspondence. I was able to help her with some of the issues, including managing her finances and medical care remotely with the assistance of her health care team and effective powers of attorney. Her impairment progressed to the point that Virginia could no longer interact with her health care team without my assistance – and we all had to find ways to accommodate her changing cognitive profile.
What I couldn’t help was with the day-to-day communications and interactions with you. I’ve only recently become aware of how profound her limits are with regard to responding to written correspondence.
You may wish to contact Virginia, and I encourage you to do so – nothing makes her happier than to connect with the people with whom she shared so much. But I want to offer a few suggestions and cautions.
Please understand that receiving, comprehending, and responding to written correspondence is very challenging for Virginia; her short-term memory loss doesn’t allow her to process and act on cards and letters she receives from her friends and family. While she enjoys receiving cards, please don’t expect a written response.
She can receive telephone calls, and is happy chatting with people; however, she may need your assistance and patience with helping her to remember who you are and your relationship with her.
Virginia loves to see people who she knows, and can receive visitors in her room at the Health Center of Mt. Angel Towers. If you happen to be near Silverton or Mt. Angel, please feel free to stop by and say hello. Again, she may need you to help remind her of your relationship, and may have gaps in her memory of your shared experiences.
I will be posting periodic updates on Virginia’s health both on my personal blog (scory.blogspot.com) and on my Facebook page (facebook.com/scott.cory).
Thanks to all for the love and compassion and experiences you’ve shared with Virginia (and me) through many years.
A late addition to the blogosphere. Periodic comments on food, politics, music, design and subjects to be determined from a late mid-century modern man.
03 July 2012
09 June 2012
Random thoughts above North America, 9 June 2012 Edition
The last four months have brought new meaning to “overload.”
Working to maintain a parent’s dignity as they face physical and cognitive crises at the end of life isn’t something you’re taught how to do. And you either do it, or you don’t.
When that challenge is combined with a work environment which is every bit as venal and guileful as a Borgia or Medici palazzo, there really isn’t much more you can do but work like hell through the week and curl up and cocoon on the weekends.
Pottery and gardening help, too, as do good Rhône reds.
Whatever glamour remained in air travel has been evaporated and remains like the thin crust found in a dried-out perfume bottle.
Bumping, shaking, and shuddering at more than 450 miles per hour through cumulonimbus clouds more than 40,000 feet tall is no way to spend a June afternoon. The ominous squeaking from some part of the cabin doesn’t help, either.
Mark Eitzel’s “60 Watt Silver Lining” may well be my favorite album from the 1990s. “Track me down and I’ll give you /my pomegranate heart” is just one of the images that sticks with me. Not to mention production values that rival Steely Dan’s “Aja” and stunning performances by Eitzel, Vudi, and Mark Isham.
The tomatoes have already bloomed and set fruit at home. And there will be lots more before frost stops the harvest.
I’m so disgusted by the politics of this electoral cycle that I can’t bear to listen to or watch the news. The foreign press, and a limited segment of the blogosphere are the only sources I can rely on without causing nausea or threatening damage to the physical object producing the sound or image.
Thinking about discussions of exsanguinations due to aortic rupture is disconcerting to say the least. When the discussion is about someone you love, it’s even more disconcerting. When the discussion leads to purchase of supplies to cope with said possible exsanguinations, it’s neither disconcerting, macabre, or terrifying, but instead is practical.
How many more of these cross-country sprints will we make before VJC dances off this mortal coil?
06 May 2012
Gnome Water
The perfect spring drink, other than lavender infused vodka lemonade.
1 1/2 ounces Hendrick’s Gin
1/2 ounce Cointreau
1ounce cucumber juice
1ounce fresh lime and lemon juice
1 tablespoon lavender syrup
Soda water
Pour first five ingredients into a cocktail shaker, give a quick roll, then pour into an ice-filled Collins glass. Top with soda water.
1 1/2 ounces Hendrick’s Gin
1/2 ounce Cointreau
1ounce cucumber juice
1ounce fresh lime and lemon juice
1 tablespoon lavender syrup
Soda water
Pour first five ingredients into a cocktail shaker, give a quick roll, then pour into an ice-filled Collins glass. Top with soda water.
21 March 2012
Random Thoughts from 38,000 feet above Eastern Oregon
“Aquas de Março” may well be my favorite song. If there is an afterlife, Tom Jobim and
Joni Mitchell will hang out, smoking cigarettes and drinking whiskey.
Business class transforms travel from horrifying to
tolerable.
When one’s parents are gravely ill, the question of how to
be good to them is the most important thing in the world. The danger is to know when and how to
protect against consuming one’s being.
It’s very nice to have enough underwear so as not to worry
about having to do laundry between unplanned trips
Since 2005, my Aunt Monica and my father have died. Edith Throckmorton died. Edie Mulholland died. Bill Martin died. Edith Stiles died. There are others, some close, some
distant – but they’re related by age.
The “Greatest Generation” is fading quickly. In a very real sense, my mother’s impending death will close
a chapter in our lives. What
chapter opens next will be fascinating.
Having discussed very painful decisions about terminal
illnesses and end-of-life issues with my mother over the last 30 years has made
the last month much easier.
Executing the decisions is relatively easy. Catching up with the emotions is quite a different
story. No, in fact I’m not all
right. Thanks for asking.
How did I ever travel without a laptop? And what will it be like to travel with
a tablet as powerful and capable as my laptop?
Labels:
Antonio Carlos Jobim,
death and dying,
domesticity,
elderwrangling,
Home,
Joni Mitchell,
technology,
travel
On being a good son to a dying mother
My mother is dying.
Not that any of us will live forever, barring the “rapture for
nerds.” My mother is 88, has
moderate dementia, and has recently been diagnosed as having a large mass in
her chest, most likely cancerous.
I can’t tell you that with 100% confidence, because my mother slapped
the radiology technician assisting with her biopsy, thus immediately ending the
procedure and delaying a definitive diagnosis of lung cancer.
In the end, I want to make sure that I’m able
to do for my mother at the end of her life what she and my father did for me
at the beginning of my life: keep
me safe, keep me warm, and let me feel loved. And if I can do that, I will have been a good son to a dying
mother.
But we know enough to know that my mother is dying, and is
likely to die sooner, rather than later.
What I’m struggling with is how to be a good son to my dying
mother. I know how to do many
things, with various degrees of comfort and competence. I can, with fluency and grace, coordinate
the IT policy of a major Federal agency.
I do a passable job as partner to the love of my life. I rock wearing really good suits, and
know my way around menus and wine lists like no one’s business. I’m an OK friend, and a not
particularly good godfather (yes, that’s my assessment of what I’ve done for
you, Cord).
The problem is, for me: what can and should I do for
Virginia Jean Kuehner Fusick Cory?
I’ve established her care goals as being “providing comfort
and reducing confusion,” know that my mother’s tolerance for discomfort and
change is shrinking every day.
I’ve tried to bring the right people together to ensure that she’s doing
what she needs to do every day, and that she can’t badger, bully, or plead her
way out of doing what she may not want to do.
So – I’m flying once again to Oregon, trying to get sorted
my mother’s collapsing world.
After having a episode with wheezing and shortness of breath which lead
to an ER visit and a hospital admission, my mother will move from the apartment
in which she has lived independently for the last 10 years to an assisted
living room. I know there will be
tears, and complaint, and resistance, but the only way I can ensure that my
mother’s days are comfortable and create minimal confusion for her is to
provide round the clock supervision for her. Without that, her chances of having an injurious fall are
certain. Without that, her failure
to medicate or refuse medication would lead to more trips to the ER and
hospital. Without that, my guilt
is unbearable.
I do know that I can’t do this myself. This is work that has to be shared with
the team – the professionals who understand how to provide care to the elderly,
and how to work with the families of the elderly, and with my family and
friends, who know how to tell me what I need to do, and when I’m trying to do
too much.
26 February 2012
Random Thoughts from 33,760 feet above Kansas
I will always be grateful for Louis Vega and Kenny Dope’s
“The Bomb” and “I Am the Black Gold of the Sun.”
Whatever happened to MC Solaar? Ya gotta love Senegalese rappers
name-checking Fred Astaire and Reddy Kilowatt, and sampling Public Enemy.
Working 80 hour weeks and giving up one’s life isn’t
sustainable or satisfying, no matter how much money you’re making.
Travel planned and executed at the last minute always costs
a lot and is rarely satisfying, regardless of the purpose of the travel or the
class of the accommodations.
Graham’s right:
“Another Green World” sounds like music for trans-human Morris dancing.
Dithering can make for good blogging, and even better
tweeting.
The older I get, the more I miss the comforts of home.
The older I get, the more I need to clean house before I
leave for travel.
LCD Soundsystem’s “All I Want” and Brian Eno’s “Over Fire
Island/St. Elmo’s Fire” are written from exactly the same place, 30 years
apart.
I’ve been flying in airplanes for 46 years. Familiarity breeds contempt. First world problems, I know.
For almost 20 years, I’ve bought a copy of Automobile, the
Economist, and Vanity Fair before any flight. It’s been an almost fetishistic ritual. I’ve changed it now, and buy Automobile
and the Harvard Business Review. I
can’t explain why I’ve changed the ritual.
Watching 15 minutes of “Jersey Shore” on the seatback feed
made me feel real shame for humanity and a desire to erase New Jersey from my
experience and family history.
Even at 50, I occasionally amuse myself with the thought of
having children with Graham (minds out of the gutter, people.) I know I’m old enough to be a
grandfather already. I don’t think
I can pull off a Jack Donaghy, and I’m pretty sure that I’d regularly find
myself in a white hot rage dealing with the issues Washington-area parents
regularly deal with.
I’m less and less interested in white tablecloth, full
service restaurants, and more satisfied by imaginative, well prepared food in
modest surroundings. Portland
rocks that trope hard: Kenny and Zuke’s, Bunk Sandwich, Le Pigeon, Beast all come to mind.
My rental car is an SUV. It was cheaper – by far – than a hybrid. Don’t hate me.
30 December 2011
The annual end of the year blog post composed high over North America
Imagine the shock you may encounter that I’ve unexpressed thoughts on the departing and incoming years. 2011 was a great and awful year in many ways. We’re hoping that 2012 will have more great, and less awful. Here’s my list of hopes, fears, joys, and discoveries from 2011 and for 2012
In no particular order:
1. Aging parents create new challenges for which there are no textbooks, no magazine articles, and no roadmaps.
My mother, at 88, is more childlike all the time. The medical term for her cognitive change – loss, really – is “senile dementia,” which is both cruel and accurate. There are many known causes. There is no cure. For now, compassion and routine are enough to allow her to live independently, comfortably, and with a measure of dignity. I’m terrified that progressive cognitive loss will tip the balance and require a change in her living situation. I’m hoping that after a long and eventful life, one night she will breathe her last breathe, and spare me the horror of seeing her infantilized and her the horror of being the child to my adult. Does this sound horrible or insensitive to you? Tough. I’ve had to make a horrifying decision at the end of my father’s life, too: remove him from a respirator and watch him die, or allow him to continue to exist, trapped in a failing body. I chose to watch him die, with comfort and compassion surrounding him. It’s far more humane to understand that the end of life is the end, rather than to beg and plead for a few more hours, days, months or years bound by increasing limits and mounting losses. My mother talks often about being “ready to go.” I understand and support her.
2. When work is the majority of your life, the appeal of home is greater than any amount of luxury.
Both G2 and I have work that we love. (OK, I love my work more than he does). But the sheer volume of work, and the expectations that we have of ourselves (not to mention other have of us) mean the time devoted to work has grown radically, for both us. Add to that a travel schedule that includes two to three weeks a month away from home for Graham, my regular trips to Oregon for elderwrangling, and you can understand how we’ve grown to resent travel. Upgrades? Fur lining on the shackles. Exotic destinations? I’m tired of novelty right now, thanks. While I believe that home is wherever you are with the ones you love, I prefer that the one I love share the same physical space at certain 85 year-old house in Washington, DC.
3. Music which sounds like it is from the past and future at the same time is what I want to listen to right now.
TV on the Radio. Caetano Veloso. LCD Soundsystem. Luisa Maita. Criolo. Joni Mitchell. Deathfix. Brian Eno. Afrika Baambaata. Brad Melhdau. Talking Heads. Joshua Redman. Monk. Bebel Gilberto. Marvin Gaye. J.S. Bach. The Clash. David Darling. Yeah, it’s a pretentious list. Sue me.
4. When the world is running down, get fucking furious and make it better.
I wish I could live this better. Alas, I’m no Caldicott, Gandhi, or Maathai. But for those of us who are privileged, but not obscenely wealthy – let’s say the 90 - 99% -- we need to recognize that while our road to hell is cosseted with good woolens, fine leather, and the best food the Earth has ever produced, we’re burning our planet to the quick along with the 1%. There is no genetic replacement for me – by choice. For the people I love and with whom I’ve a parental relationship, I’m horrified of the world that I’m bequeathing to them. Increasing inequality, increasingly scarce resources, and a climate that is changing in ways even the best modeling can’t predict: that’s not something I’m proud of leaving behind, and I will do more to change it.
5. Making and taking care of things is a great gift, and one that we undervalue.
My parents imbued me with values that encourage do-it-yourself. I’m grateful for those values, and try to live it. Yes, it’s in small ways – we have a garden that we care for ourselves, we clean our house, and we minimize our use of services provided by others when we can (see item 2). But when we do purchase things made by, or use the services of others, we try to make sure that the providers are well and fairly compensated for the work that we engage them to do.
6. Live, love, laugh.
Three simple words to live by. We’ve already resolved to do more of all three in 2012, and hope that all of our friends and family will do the same.
1. Aging parents create new challenges for which there are no textbooks, no magazine articles, and no roadmaps.
My mother, at 88, is more childlike all the time. The medical term for her cognitive change – loss, really – is “senile dementia,” which is both cruel and accurate. There are many known causes. There is no cure. For now, compassion and routine are enough to allow her to live independently, comfortably, and with a measure of dignity. I’m terrified that progressive cognitive loss will tip the balance and require a change in her living situation. I’m hoping that after a long and eventful life, one night she will breathe her last breathe, and spare me the horror of seeing her infantilized and her the horror of being the child to my adult. Does this sound horrible or insensitive to you? Tough. I’ve had to make a horrifying decision at the end of my father’s life, too: remove him from a respirator and watch him die, or allow him to continue to exist, trapped in a failing body. I chose to watch him die, with comfort and compassion surrounding him. It’s far more humane to understand that the end of life is the end, rather than to beg and plead for a few more hours, days, months or years bound by increasing limits and mounting losses. My mother talks often about being “ready to go.” I understand and support her.
2. When work is the majority of your life, the appeal of home is greater than any amount of luxury.
Both G2 and I have work that we love. (OK, I love my work more than he does). But the sheer volume of work, and the expectations that we have of ourselves (not to mention other have of us) mean the time devoted to work has grown radically, for both us. Add to that a travel schedule that includes two to three weeks a month away from home for Graham, my regular trips to Oregon for elderwrangling, and you can understand how we’ve grown to resent travel. Upgrades? Fur lining on the shackles. Exotic destinations? I’m tired of novelty right now, thanks. While I believe that home is wherever you are with the ones you love, I prefer that the one I love share the same physical space at certain 85 year-old house in Washington, DC.
3. Music which sounds like it is from the past and future at the same time is what I want to listen to right now.
TV on the Radio. Caetano Veloso. LCD Soundsystem. Luisa Maita. Criolo. Joni Mitchell. Deathfix. Brian Eno. Afrika Baambaata. Brad Melhdau. Talking Heads. Joshua Redman. Monk. Bebel Gilberto. Marvin Gaye. J.S. Bach. The Clash. David Darling. Yeah, it’s a pretentious list. Sue me.
4. When the world is running down, get fucking furious and make it better.
I wish I could live this better. Alas, I’m no Caldicott, Gandhi, or Maathai. But for those of us who are privileged, but not obscenely wealthy – let’s say the 90 - 99% -- we need to recognize that while our road to hell is cosseted with good woolens, fine leather, and the best food the Earth has ever produced, we’re burning our planet to the quick along with the 1%. There is no genetic replacement for me – by choice. For the people I love and with whom I’ve a parental relationship, I’m horrified of the world that I’m bequeathing to them. Increasing inequality, increasingly scarce resources, and a climate that is changing in ways even the best modeling can’t predict: that’s not something I’m proud of leaving behind, and I will do more to change it.
5. Making and taking care of things is a great gift, and one that we undervalue.
My parents imbued me with values that encourage do-it-yourself. I’m grateful for those values, and try to live it. Yes, it’s in small ways – we have a garden that we care for ourselves, we clean our house, and we minimize our use of services provided by others when we can (see item 2). But when we do purchase things made by, or use the services of others, we try to make sure that the providers are well and fairly compensated for the work that we engage them to do.
6. Live, love, laugh.
Three simple words to live by. We’ve already resolved to do more of all three in 2012, and hope that all of our friends and family will do the same.
02 October 2011
Truth to Power and the Power of the Prophetic Voice
Professor Cornel West, whom I first wrote about here, and whose acquaintance I am proud to acknowledge, is on fire here. There's not much more to add, other than I hope that Occupation Wall Street will find a way to give voice to what Brother West spoke of in this video.
17 September 2011
Faites attention
The United States has a pretty significant history of labor and social unrest as a result of economic inequality and ownership abuse of labor. Conveniently, it's been expunged from our current education's curriculum.
The period from 1900 - 1950 saw the development of organized labor and the evolution of its relationship from a threat to ownership into an effective collaboration with ownership and management. The reason why it was effective is that ownership correctly understood the threat to it that organized labor represented.
People need to pay attention to what's beginning to happen.
The period from 1900 - 1950 saw the development of organized labor and the evolution of its relationship from a threat to ownership into an effective collaboration with ownership and management. The reason why it was effective is that ownership correctly understood the threat to it that organized labor represented.
People need to pay attention to what's beginning to happen.
14 July 2011
The apocalypse of words
From my beloved. I've added a bit.
We are on the brink of a new age.
It's all about community.
Float this.
Clear that.
"ASL" is geezer speak.
Roll your own roll-your-own.
The words aren't what they were.
Cry out, blogosphere!
Splog is an aggregate noun.
Single. Word. Sentences!
Always be launching.
Clustering.
We're about what Web 2.0 is about.
An AJAX-driven GUI.
The new is old.
This will change everything.
Hack it.
MSM just doesn't get it.
Folksonomy.
The buzz is loud and clear.
It's all changing.
Podcasts.
You need someone who gets it.
Social is the new push.
We shall transcend borders.
Label what defies categorization.
2.0 is the new New.
This is newer media.
Faster. Faster!
On-demand streams.
News clouds
What's the value proposition?
Hyperspecialization
Chase the short
This sounds like a fuckin' TED or Gartner Symposium keynote presentation. No wonder I try and avoid them like a plague.
We are on the brink of a new age.
It's all about community.
Float this.
Clear that.
"ASL" is geezer speak.
Roll your own roll-your-own.
The words aren't what they were.
Cry out, blogosphere!
Splog is an aggregate noun.
Single. Word. Sentences!
Always be launching.
Clustering.
We're about what Web 2.0 is about.
An AJAX-driven GUI.
The new is old.
This will change everything.
Hack it.
MSM just doesn't get it.
Folksonomy.
The buzz is loud and clear.
It's all changing.
Podcasts.
You need someone who gets it.
Social is the new push.
We shall transcend borders.
Label what defies categorization.
2.0 is the new New.
This is newer media.
Faster. Faster!
On-demand streams.
News clouds
What's the value proposition?
Hyperspecialization
Chase the short
This sounds like a fuckin' TED or Gartner Symposium keynote presentation. No wonder I try and avoid them like a plague.
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